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Champions for Childhood Epilepsy Campaign Summit announced
The NCYPE Chief Executive, David Ford and Prince of Wales’s Chair in Childhood Epilepsy, Professor Helen Cross are delighted to host a Champions for Childhood Epilepsy Campaign summit on epilepsy surgery.
The event, entitled - Epilepsy Surgery: better futures or false economies? will take place at The Goodenough College, Bloomsbury, London on Wednesday 17 November 2010 from 9.30am to 3.30pm
It is aimed at paediatric consultants, GPs and nurses with a specialist interest in epilepsy, service providers and those responsible for NHS budgets, policy and the commissioning of services.
A more detailed invitation and programme is available here.
There is no charge for this event but spaces are limited to a maximum of 60 delegates and will be reserved on a first come, first served basis.
For further information or to reserve your place, please contact Alison Cornell on 01342 832243 ext 444 or email
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National Childhood Epilepsy Training Programme for Schools Launched
First phase of ‘Epilepsy Education 4 Schools’ to give free lessons and training in south east schools
Schools across south east England and outer London will have access to free teaching and staff training about childhood epilepsy from next Wednesday 1 September 2010, thanks to a new initiative from children’s epilepsy charity, The National Centre for Young People with Epilepsy (NCYPE).
Lessons given by the NCYPE’s epilepsy education professionals for children aged 5 to 18 can be accompanied by staff training sessions for staff in how to support a pupil with epilepsy, depending on each school’s needs.
“The condition and the medication used to control seizures can cause memory, learning and behavioural problems,” says the NCYPE’s Childhood Epilepsy Information Service Manager, Gill Gallagher, “so it’s vital that schools provide the right support.”
She adds, “Over 60,000 children under 18 have with epilepsy nationally and many more live with a family member with epilepsy. On average there is one child in every primary school and five in every secondary school with the condition.
“By helping children understand more about epilepsy, many issues in the PSHE curriculum can be addressed and staff training can also help to ensure Every Child Matters.
“This is a very relevant issue for schools. Epilepsy in children is more common than Type 1 diabetes, but it is still one of the least talked about and understood conditions.”
The south east England phase of the programme has been generously funded by 15 donors and funding has been received from the BIG Lottery fund to expand the programme into the outer London area.
More funding is needed to expand further across the whole of the UK. “The aim is to have 8 more regional education teams established over the next 2 years, so that every single school has the opportunity to improve their knowledge and understanding of epilepsy.” says Gill Gallagher.
Working very closely with the NCYPE’s Champions for Childhood Epilepsy Campaign, the Campaign webpage the programme will also be involved in setting up support groups for families affected by childhood epilepsy.
For more information about Epilepsy Education 4 Schools please go to the Epilepsy webpage and click on the Epilepsy Awareness in Schools link.
Pictured: The Epilepsy Education Team from the NCYPE raring to go!
Epilepsy Services Conference - Presentations
Best Value, Better Care - Commissioning Epilepsy Services
The Department of Health, UCB Pharma and the Joint Epilepsy Council hosted an event on commissioning epilepsy services in February 2010 at the Holiday Inn, London Kensington Forum.
This was a key opportunity for clinicians and commissioners of epilepsy services to come together to find out how commissioning high quality services can make a very real difference to the thousands of children and adults living with epilepsy.
For all presentations from the day provided by the booking website, please click here
.Or go to The Long Term Conditions Community website
for more information.NCYPE to host a masterclass by Professor Helen Cross
The NCYPE is delighted to host a masterclass by Professor Helen Cross on Thursday 18 November 2010, 9.30am – 4.30pm.
The event, which is aimed at consultants, doctors and nurses with a specialist interest in epilepsy, will take place at the Neville Childhood Epilepsy Centre at The National Centre for Young People with Epilepsy in Lingfield, Surrey.
A detailed Masterclass Invitation and Programme is now available.
Spaces are limited to a maximum of 40 delegates and will be reserved on a first come, first served basis with a non-refundable £10 registration fee.
Click here for a Masterclass booking form.
For further information, please contact Caroline Newman on 01342 832243 ext 424 or email This e-mail address is being protected from spambots. You need JavaScript enabled to view it
‘Epilepsy Champions’ take pride of place at Parliamentary launch
Boost for pupils with epilepsy as school ‘Epilepsy Champions’ take pride of place at Parliamentary launch. Thirty one staff from Surrey and Sussex schools who trained to become ‘Epilepsy Champions’ as part of a new scheme run by The National Centre for Young People with Epilepsy (NCYPE) are being thanked today at a launch held at the House of Commons. The staff took part in a pilot scheme organised by the NCYPE and the Tandridge Confederation, which covered 21 schools and 7000 pupils, around 50 of whom have epilepsy. The report on the pilot’s results is being celebrated at the official reception hosted by the NCYPE’s local MP, Sam Gyimah. In 2009, each of the 21 schools school taking part chose one or more members of staff to become their ‘epilepsy champion’. The staff then received free training from the NCYPE and went back to work with their colleagues to revise school policies and procedures on supporting with pupils with epilepsy. As a direct result of the pilot programme, three young lives have already been changed for the better. Two young people have been referred for assessment while, in another case, a staff member attended a consultant’s appointment with a pupil with epilepsy. The extra information provided led to a change in medication. Champions for Childhood Epilepsy campaign manager Alan Cruickshank said: “These teachers and staff have championed childhood epilepsy in their schools and we are hugely grateful for their hard work and to Sam Gyimah for hosting this reception. “The feedback the staff provided has helped us refine the Champions for Childhood Epilepsy campaign as we roll it out nationally.” “The pilot phase of our campaign, which covered a small proportion of young people with epilepsy, changed three young lives - just imagine what it could achieve across the country. That’s why we hope decision makers will see the benefits of the scheme and give it their full support.” Sam Gyimah MP said: “I am delighted to be supporting the NCYPE and the ‘Epilepsy Champions’ from schools in the East Surrey area. Their efforts to raise awareness of childhood epilepsy and to improve support for young people with the condition across the UK are hugely valuable.” In addition to the low-cost study days and training the charity already provides across the country, the NCYPE has received funding from donors to provide some free epilepsy training for schools in the South East of England. Interested schools should contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it for more information.Page 1 of 12